Broken Bones: Growing up with Juvenile Osteoporosis - Forward

Forward

For a while now I have wanted to write about my experience growing up with Juvenile Osteoporosis.  I had ambitions of writing the whole thing about as a book and doing something with that.  Instead, I have decided to release it in sections as a serial on here.  I am going to release one chapter every week until I am finished.  I have about 4 chapters written so far and I am not sure how many I will add as I go.

This writing is from my head and from my heart.  I have not gone back to look at my medical records, or checked the spelling of people's names.  All of the dates are approximates.  I am doing this for myself more than anything and I am going from what I remember as little kid and what my parents have shared with my over the years.

I hope that if you read this, you enjoy learning about what it was like growing up with this, and how I overcame the struggles and limitations that were imposed upon me because of it.

Sick Ticket's New Album

Congrats New York

Well, this is a couple of days late, but as a true New England sports fan, it takes me a moment to get over it. The Super Bowl was a good game even if my team didn't win. It was actually almost worth having the Giants win when my buddy Johnnie said "if the Giants win, I'm going to tear off my wife beater." Needless to say, his wife beater ended up in two pieces hurled at the TV.

My mistake with Sunday was that I invited all New York fans to my house. No fellow Patriots fans were with. In contrast back in 2002, I had a party at my college apartment with 20 Pats fans and 2 others. When the Pats won their first ever Super Bowl as the underdogs, the room jumped as one mob and falling over together at the end. After that win, I never expected for them to win two more times in the next few years.

Personally, this season was blah. Yes, my team was winning, but it became to automatic, and I began to feel like a dirty Yankees fan. Having that attitude that your team will win just because they are that good. It wasn't even worth watching all the games. I wasn't excited to watch football until the Ravens gave them a run for their money.

In the end, I'm over it. I've seen 3 Super Bowl victories and 2 World Series since 2002. In contrast being someone that grew up cheering for the Bo Sox, Pats, Whalers and even the Bills when they lost 4 Super Bowls in a row, I am used to and perfectly OK with saying 'Next Year'. After all, if you don't have something to look forward to, what's the point?

Mannequin orgy

I stumbled upon this scene when I opened the wrong door at the local
Gap.

Oh, the humanity

Cain's Mayo?

So, there are some people, I have found, that love Cain's mayo. I think it is terrible. I was raised that mayo is the "glue" to a sandwich, the flavor that just gently enhances what's on the plate without getting all up in your grill.

I made a sandwich today, with some of this murderous mayo. I forgot how in-your-face it is. It totally overpowered my turkey sandwich and ruined my lunch. I finished it, but was forced to supplement, thereby negating my cost savings from bringing lunch.

Northport at Sundown

For an iPhone camera, not bad right?

Bachelor Rice and Beans

So, I’m not a big fan of kraft mac and cheese as a meal, and ramen, while delicious, doesn’t cut it in the making me feel like I’ve eaten something category. Still, when you are a bachelor working hard and living alone (or with two roommates who certainly aren’t going to cook for you), sometimes you need easy meals to make. Last night, I adapted a few rice and bean recipes to give me something easy and delicious. I’ll try and put It in recipe format.

1 sliced jalapeño pepper, seeds removed
1 large onion, chopped
1 clove garlic, shallot, green onion or whatever else you might have around
1 can black beans (red kidneys would work here too)
1-2 slices raw bacon
Spices (I used cumin, chili powder, adobo and others)
1 tsp white vinegar
Salt to taste
1 and 3/4 cups water
1 cup rice

Cook the bacon over high heat, but don’t burn the grease. Remove from pan to cool. In the bacon grease, cook the onions garlic and jalapenos (careful not to inhale) until the onions are kind of soft and browning a little. Season this mixture with whichever spices you choose. When you are satisfied with how the “veggies” look, open the beans and add with liquid and all. Move these around and get then nice and hot for a few minutes, then add the water and vinegar, and a good dash of salt (around a teaspoon). Bring this all to a boil on medium high and let it cook down for about 5 minutes, or until you notice it start to thicken a bit. Add the rice and the now cooked bacon (cut up) and throw a lid on it.

Cook for 20 minutes on simmer, and voila—stir it up and you have a hearty, easy meal. If you get carried away on the jalapenos and need to cool it down, a dash of creamy salad dressing as a topping is delicious.

Google Maps with My Location

Now it is true that I'm an Apple guy. I have my Mac Pro, my iPod and my iPhone, but there is a tech company that I really love, and that is Google. Two days ago (obviously I've been way too busy to have written this blog already), Google released an updated to their Mobile Maps with version 2.0 and a new beta feature called My Location. Instead of me tell you what it is, just watch this video.




First of all, I love that video, and second of all, I love this new technology, although I haven't been able to use it yet. Currently, the update for the iPhone hasn't happened yet, so I'm waiting for Apple to get on that. However, in the office here I do have a Verizon Motorola Q. I went ahead and downloaded the program to the phone and then pressed '0' to have it tell me My Location. And it tells me, "Your current location is temporarily unavailable." This is the result that I have gotten for two days now. But then I remember that it is still in Beta and doesn't full work. Then again, Gmail was in beta for like two years and that worked great.

Update to Spam Fun

Mr. Wong,
Of course I trust you! I cannot think of any reason I wouldn't want to trust you, especially now that you have shared a copy of your official government ID. Don't worry, it is safe with me.

My information is on the way, I need to go to a local Kinko's and get them to scan it in. Do you have Kinko's where you live? I'm not sure what Hong Kong is like, If it is anything like the restaurant by my house Hong Kong Kitchen, the food must be really good and it must be really nicely decorated. Are there giant fishtanks everywhere?

Anyhow, I will be in touch soon with my own documents. I can't wait until we are sipping drinks together in the future, both wealthy from our business deal!

Sincerely,
Justin

On Nov 30, 2007 7:15 AM, peter wong wrote:

Dear :Justin

Thanks alot for your willingness to partner with me in pulling out my deceased client funds from my bank and also this is to acknowledge the receipt of your sent in informations .I have just forwarded it to my Attorney to begin work on the documentations that will put you as next of kin to my late client.

Be informed that the fact that you are a foreigner give you the priviledge to stand in as my deceased client beneficiary as my deceased client had no relations and all his family died with him during the war and i can not use my relation because its not accepted here in hong gonk.

Also I am very confident that we will be able to establish the trust that is needed to complete this deal and all that I need for the time been is your willingness and commitment so that we can end this in the next one week.

What you need to understand about this transaction is that I will make sure that it passes through all international banking laws, regards to this I will take care of all the expenses and the cost of retaining the service of an Attorney to give the transaction the proper documentation that is required to perfect the finishing.Your only obligation in this transaction will be to set up an offshore account that can accomodate these funds.

Quickly be informed that you will have to set up an Offshore account where the funds will be transferred to and and from this offshore account the money will be transferred your account in your country in bits so that it will not raise eyebrows.The reason why you will have to set up this Offshore Account with THE OFFSHORE BANK IN EUROPE is to by cut all the Government taxes and world monetary regulatory bodies and it won't raise any suspicion.

Having said that be informed that you will need some amount to set up this account with the offshore bank as opening deposit as its been called based on the fact that its an Offshore account, this however will enable the account to accomodate the funds that will be transferred and the money will not bounce back to my bank because if it does that will lead to investigation by the monetary body on why and what makes the money to bounce back and on that ground they will detect what we have done .

I choose to make this plans clear to you so that you know the level of your comittment in this project, you have to trust me even as I have trust in you. On this ground I have attached a copy of my work id for your perusal and trust and I want you to send me yours as well any means of your identification either International passport,Drivers license or your working ID card. I hope you understand why this is important.
More so at this moment I am checking on all my Offshore bank contacts to find out the cheapest that you can afford to deal with and when you have sent me your means of identification I will send you the bank details for you to make inquiry on how you can set-up the Offshore account.

Once again I like to thank you for the informations sent in and dont forget to send me your means of identification.

I am anticipating to reading from you soonest.

Sincerely,
Mr.Peter wong

Spam Fun

Mr Wong,
I am flattered and honored that you have chosen me as the vessel for this admirable venture. I'm a very spiritual man, and I believe strongly that good deeds are repaid tenfold. I had no idea that when I gave the woman money with the salvation army tin and the bell it would come back to me so quickly, and about a million times!

You haven't made a mistake. I think we will be excellent business partners, and despite what some people say, two wrongs don't make a right, but one Mr. Wong does!!

Sincerely,

Justin

On Nov 28, 2007 6:52 PM, Mr. peter wong <rwong@myway.com> wrote:

DEAR FRIEND,

I am Mr.paul leech Executive Director of the Hang Seng
Bank Ltd, taiwan.An Iraqi named Besem Faruak,
a business man made a numbered fixed deposit of
(126,336,8299.38 hk) for 18 calendar months, this is
 valued  to Eigth milion United State Dollars only  in
my branch.

Upon maturity several notice was sent to him, even
during the war,four years ago (2003). Again after the
war another  notification was sent and
still no response came from him. We later  found out
that Besem Faruak, and his family had been killed
during the  war in Gunfire that hit their

home at Mukaradeeb where his personal  oil well was.
After further investigation it was also discovered
that Besem Faruak,
 did not declare any next of kin in his official
papers including the  paper work of his bank deposit.
And he also confided in me the last  time we was

 at my office that no one except me knew of his
deposit in  my bank. So, Eigth  milion United State
Dollars is still lying
 in my bank and no one will ever come forward to
claim it. What bothers me is that according to the
laws of my country

at the expiration five years six months the funds will
revert to the  ownership of the hong kong Government if
nobody
applies to claim the  funds.

My proposal, I am prepared to place you as the next of
kin in a  position to instruct HANG SENG BANK to
release the deposit to you as  the closest
surviving relation. Upon receipt of the deposit, I am
prepared to share the money with you in half. That is:
I will simply  nominate you as the
 next of kin and have them release the deposit to
you. We share the procentange50/50.

I would have gone ahead to ask  the funds be released
to me, but that would have drawn a straight line  in
my involvement in claiming the
deposit.I assure you that I could  have the deposit
released to you within a few days.
 I will simply  inform the bank of the final closing
of the file relating to Besem Faruak, I will then
officially communicate with my
 Bank and instruct  them to release the deposit to
you. With these: all is done.

I am  aware of the consequences of this
proposal.should be interested in executing this with
me;
indicate your interest by sending me the following:

1. YOUR NAME
2. YOUR RESIDENT ADDRESS
3. YOUR OCCUPATION
4. YOUR PHONE NUMBER
5. DATE OF BIRTH
6. COUNTRY OF RESIDENT

Your response with the requested information should be
sent to reach me at my personal email address below:
peterwong_4@yahoo.com.hk

I shall then provide you with more details on this
operation when I hear from you.

Sincerely,
Mr.peter wong