Forward
For a while now I have wanted to write about my experience growing up with Juvenile Osteoporosis. I had ambitions of writing the whole thing about as a book and doing something with that. Instead, I have decided to release it in sections as a serial on here. I am going to release one chapter every week until I am finished. I have about 4 chapters written so far and I am not sure how many I will add as I go.
This writing is from my head and from my heart. I have not gone back to look at my medical records, or checked the spelling of people's names. All of the dates are approximates. I am doing this for myself more than anything and I am going from what I remember as little kid and what my parents have shared with my over the years.
I hope that if you read this, you enjoy learning about what it was like growing up with this, and how I overcame the struggles and limitations that were imposed upon me because of it.